Event Details

Out Run Rett 5K Run/Walk

Date: May 20th, 2017
Venue: 5K Run/Walk
Address: 1st and Main Street
City: New Suffolk
Organization: Out Run Rett (RSRT)
Time: 09:00 a.m.
Price: $15 for students/$25 adults
Age: All ages welcome
Website: http://reverserett.org/run
Phone: 631-594-2222

North Fork residents Maren (age 5) and Rachel (age 7) have Rett Syndrome, a single gene disorder causing significant disabilities.Rett strikes without warning; within a few months of their first birthdays, these previously “normal” little girls lost their first words and began what has become almost constant hand wringing. Today, neither can stand without assistance, walk, talk, or use her hands. Simply, Rett is horrible.

But along with this terrible diagnosis comes amazing hope-gene therapy. By fixing the genetic error, researchers have completely reversed Rett in animal models, even at late stages of the disease, and recent studies confirm that the same is possible for humans. Our hope is real and for the first time ever, technically possible. But science is expensive and we need help funding a clinical trial

Join us on May 20th in beautiful New Suffolk and show Maren, Rachel and all who battle Rett that they have real live superheroes helping them fight and win. Together, we have the power to Out Run Rett. What’s more super than that.
Register at reverserett.org/run